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Case ID
Gender:
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male
female
Age:
ISCN Nomenclature:
Deletion:
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9
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17
18
19
20
21
22
X
Y
--Select--
p
q
X
Y
Duplication:
--Select--
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
X
Y
--Select--
p
q
X
Y
Recipient:
--Select--
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
X
Y
--Select--
p
q
X
Y
Inheritance:
--Select--
De Novo
inherited from normal mother
inherited from normal father
inherited from abnormal mother
inherited from abnormal father
Unknown
Person submitting case:
Institute:
Address:
City:
State/Province:
--Choose State--
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AS
Country:
--Choose Country--
Afghanistan
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Chile
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Congo, Democratic Republic of the
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Thailand
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United Arab Emirates
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United States
United States minor outlying islands
Uruguay
Uzbekistan
Vanuatu
Vatican City
Venezuela
Vietnam
Virgin Islands, British
Virgin Islands, U.S.
Wallis and Futuna
Western Sahara
Yemen
Zambia
Zimbabwe
Phone:
FAX:
email:
Notes:
Metabolic Screening
Urine Organic Acids:
--Select--
Not Done
Normal
Abnormal
Urine Amino Acids:
--Select--
Not Done
Normal
Abnormal
Serum Amino Acids:
--Select--
Not Done
Normal
Abnormal
Very Long Chain Fatty Acids:
--Select--
Not Done
Normal
Abnormal
Fatty Acid Oxidation:
--Select--
Not Done
Normal
Abnormal
Mitochondrial testing:
--Select--
Not Done
Normal
Abnormal
Muscle Biopsy:
--Select--
Not Done
Normal
Abnormal
Other:
Radiology Studies
Brain MRI:
--Select--
Not Done
Normal
Abnormal
Brain CT:
--Select--
Not Done
Normal
Abnormal
Skeletal Survey:
--Select--
Not Done
Normal
Abnormal
X-rays:
--Select--
Not Done
Normal
Abnormal
Other:
Other Labs
Endocrine:
--Select--
Not Done
Normal
Abnormal
Hematology:
--Select--
Not Done
Normal
Abnormal
CBC:
--Select--
Not Done
Normal
Abnormal
Thyroid:
--Select--
Not Done
Normal
Abnormal
Other:
MR/DD:
--Select--
Unknown
Yes
No
Degree:
--Select--
Mild
Moderate
Severe
Profound
Speech:
--Select--
Unknown
Normal
Delay
Absent
Gait:
--Select--
Unknown
Normal
Abnormal
Dysmorphic Features
Eye position:
--Select--
Not Done
Normal
Abnormal
Eye anomalies:
--Select--
Unknown
Normal
Abnormal
Ear position:
--Select--
Unknown
Normal
Abnormal
Ear anomalies:
--Select--
Unknown
Normal
Abnormal
Nose:
--Select--
Unknown
Normal
Abnormal
Hair:
--Select--
Unknown
Normal
Abnormal
Head Shape:
--Select--
Unknown
Normal
Abnormal
Mouth or Chin:
--Select--
Unknown
Normal
Abnormal
Cleft Lip:
--Select--
Unknown
Present
Absent
Cleft Palate:
--Select--
Unknown
Present
Absent
Other:
Behavior Problems
Aggressive:
--Select--
Unknown
Present
Absent
Hyperactivity:
--Select--
Unknown
Present
Absent
ADHD:
--Select--
Unknown
Present
Absent
ADD:
--Select--
Unknown
Present
Absent
Autism:
--Select--
Unknown
Present
Absent
Self Abuse:
--Select--
Unknown
Present
Absent
Other:
Growth
IUGR:
--Select--
Unknown
Present
Absent
Failure to thrive symmetric growth:
--Select--
Unknown
Present
Absent
Failure to thrive asymmetric growth:
--Select--
Unknown
Present
Absent
Short stature:
--Select--
Unknown
Present
Absent
Tall stature:
--Select--
Unknown
Present
Absent
Obesity:
--Select--
Unknown
Present
Absent
Hemihypertrophy:
--Select--
Unknown
Present
Absent
Other:
Other Anomalies
Microcephaly:
--Select--
Unknown
Present
Absent
Macrocephaly:
--Select--
Unknown
Present
Absent
Brain anomalies:
--Select--
Unknown
Present
Absent
Congenital Heart Defect:
--Select--
Unknown
Present
Absent
Respiratory anomalies:
--Select--
Unknown
Present
Absent
Abdominal Wall Defect:
--Select--
Unknown
Present
Absent
GI Anomalies:
--Select--
Unknown
Present
Absent
Renal anomalies:
--Select--
Unknown
Present
Absent
Genital or urinary anomalies:
--Select--
Unknown
Present
Absent
Limb anomalies:
--Select--
Unknown
Present
Absent
Skeletal anomalies:
--Select--
Unknown
Present
Absent
Skin anomalies:
--Select--
Unknown
Present
Absent
Neural Tube Defects:
--Select--
Unknown
Present
Absent
Seizures:
--Select--
Unknown
Present
Absent
Hypertonia:
--Select--
Unknown
Present
Absent
Hypotonia:
--Select--
Unknown
Present
Absent
Other:
PREGNANCY HISTORY
Gestational Age at delivery in weeks
:
Oligohydramnios:
--Select--
Unknown
Present
Absent
Polyhydramnios:
--Select--
Unknown
Present
Absent
Abnormal Ultrasound Findings:
--Select--
Unknown
Present
Absent
Abnormal Triple Screen:
--Select--
Unknown
Present
Absent
Other:
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